Narcolepsy, Actually
Narcolepsy, actually.
Beyond the stereotypes, sleep jokes, and oversimplified explanations is a real life—with work, relationships, ambition, frustration, humor, and a lot of invisible calculation.
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The pieces this hub is built around
For the Longest Time, I Had Narcolepsy and Didn't Know It
I spent most of my life believing constant exhaustion was something I simply had to manage. Receiving a Type 1 narcolepsy diagnosis gave me an answer—and an entirely new question: now what?
The NAP Method: Notice, Adjust, Prioritize
A three-step planning check-in for days you cannot forecast, and the thinking behind each step.
Why Traditional Productivity Advice Fails Fluctuating Energy
Popular systems quietly assume that tomorrow will feel like today. Here is what to keep, what to drop, and what to replace.
Everything listed here is finished and readable, starting with Anne's founder story. More pieces may be added over time.
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By category
For the Longest Time, I Had Narcolepsy and Didn't Know It
I spent most of my life believing constant exhaustion was something I simply had to manage. Receiving a Type 1 narcolepsy diagnosis gave me an answer—and an entirely new question: now what?
The NAP Method: Notice, Adjust, Prioritize
A three-step planning check-in for days you cannot forecast, and the thinking behind each step.
Why Traditional Productivity Advice Fails Fluctuating Energy
Popular systems quietly assume that tomorrow will feel like today. Here is what to keep, what to drop, and what to replace.
What Narcolepsy Actually Feels Like
A lived-experience introduction to the parts people do not always see.
Nightmares, Sleep Paralysis, and the Nights That Did Not Feel Like Rest
My experience with frightening nights, neurology appointments, and learning that I was not the only one.
When a Good Sleep Score Does Not Match How You Feel
Wearable measurements are useful information. They are not the whole experience.
The Invisible Calculations Behind an Ordinary-Looking Day
The planning nobody sees, and why an ordinary day can cost more than it looks.
What I Wish People Understood About Invisible Sleep Disorders
Written for the colleagues, friends, and family who want to help and are not sure how.
How I Built a Consulting Career With Narcolepsy
The Narcoleptic Consultant — a recurring founder series.
Content labels
What each label means
- Founder Experience
Anne's personal experience. One person's account — never evidence, never a description of how narcolepsy works for anyone else.
- Lived Experience
A first-person account. Personal experience, not clinical guidance.
- Practical Guide
Step-by-step organizational support you can adapt to your own day.
- Educational Resource
General background information, with sources pointed to their originals.
- Community Story
Contributed by someone in the community, in their own words.
- Expert Reviewed
A future label. Nothing on NAP carries it yet — it will only appear once a qualified professional has actually reviewed the piece.
Get new pieces when they are actually finished.
The Actually Practical Letter goes out when there is something genuinely useful — a published article, a free tool, or a planning approach worth borrowing.