Resource library
Actually useful.
Organizations, medical background, peer support, advocacy, research, and workplace rights — each one a real link, described in plain words, with the basis for including it attached.
Product and lifestyle collections are still being written. NAP will not invent reviews, ratings, prices, testing claims, or endorsements to fill a page.
Support and safety
Use the right kind of help
For non-emergency questions about symptoms, treatment, driving, or safety-critical work, contact a qualified clinician who knows your situation. If you or someone else is in immediate danger, contact local emergency services. The organizations below provide information, advocacy, and peer support; NAP does not monitor this page for urgent help.
Start here
Organizations and information you can use today
External links open on the organization's own site. NAP is not affiliated with any of them, and none of them paid to be here.
- Medical backgroundCarefully Researched
NINDS — Narcolepsy information page
United States · used worldwide
The US National Institute of Neurological Disorders and Stroke overview: symptoms, types, how diagnosis works, and current research directions. A good first link to send someone who has just heard the word narcolepsy.
Visit ninds.nih.gov(opens in a new tab) - Medical backgroundCarefully Researched
MedlinePlus — Narcolepsy
United States · plain language
Plain-language health information from the US National Library of Medicine, with onward links to clinical trials and genetics. Useful when the reading energy is low.
Visit medlineplus.gov(opens in a new tab) - Medical backgroundCarefully Researched
Sleep Education (American Academy of Sleep Medicine)
United States
Patient-facing material from the professional body for sleep medicine, including how sleep centres and sleep studies work. Helpful before a first specialist appointment.
Visit sleepeducation.org(opens in a new tab) - OrganizationCarefully Researched
Project Sleep
United States · international programs
A nonprofit focused on sleep health and narcolepsy awareness, running education campaigns, scholarships, and patient-voice programs. One of the most active organizations for people who want to do something with their experience.
Visit project-sleep.com(opens in a new tab) - AdvocacyCarefully Researched
Rising Voices of Narcolepsy
United States · applications open periodically
Project Sleep's training program for people with narcolepsy or idiopathic hypersomnia who want to speak and write publicly about it. Practical media and storytelling training rather than a support group.
Visit project-sleep.com(opens in a new tab) - Peer supportCarefully Researched
Narcolepsy Network
United States
A long-running patient organization with an annual conference, support group listings, and educational material written for people living with narcolepsy rather than for clinicians.
Visit narcolepsynetwork.org(opens in a new tab) - OrganizationCarefully Researched
Wake Up Narcolepsy
United States
A nonprofit funding narcolepsy research and running support programs, including groups for parents and for people newly diagnosed.
Visit wakeupnarcolepsy.org(opens in a new tab) - OrganizationCarefully Researched
Hypersomnia Foundation
United States · international audience
Focused on idiopathic hypersomnia and related central disorders of hypersomnolence. Worth knowing about if the diagnostic picture is not clearly narcolepsy, or has changed.
Visit hypersomniafoundation.org(opens in a new tab) - Peer supportCarefully Researched
Narcolepsy UK
United Kingdom
UK charity with a helpline, local groups, and guidance shaped around UK healthcare, benefits, and driving rules — which differ meaningfully from US material.
Visit narcolepsy.org.uk(opens in a new tab) - Work & rightsCarefully Researched
Job Accommodation Network (JAN)
United States
Free, confidential guidance on workplace accommodations, funded by the US Department of Labor. Concrete examples of adjustments, and how to ask for them, rather than general encouragement.
Visit askjan.org(opens in a new tab) - Work & rightsCarefully Researched
ADA National Network
United States
Guidance on rights under the Americans with Disabilities Act, with regional centres you can contact directly with a specific question.
Visit adata.org(opens in a new tab) - ResearchCarefully Researched
ClinicalTrials.gov — narcolepsy studies
International registry
The public registry of studies, including which are recruiting and where. Listing a trial is not a recommendation to join one — that is a conversation for you and your clinician.
Visit clinicaltrials.gov(opens in a new tab)
Fun and practical
Collections being written
Not every useful thing is a medical resource. These are the practical and genuinely enjoyable collections in progress — each opens when there is something honest to put in it.
Low-effort meals
Planned — not currently availableFood that happens on a day with no cooking in it: assembly meals, freezer strategies, and what to keep in the cupboard for a bad week.
Nap kits
Planned — not currently availableWhat people actually keep in a bag, a desk drawer, or a car so a nap is possible somewhere that is not home.
Packing for travel days
Planned — not currently availableLists built around energy cost rather than weight — what makes an airport, a hotel, or a conference survivable.
Home and organization
Planned — not currently availableSmall systems that cut the number of decisions a day asks for, including the ones that are not worth the effort.
Work setup
Planned — not currently availableDesk, audio, note capture, and meeting support that lower the cost of a working day.
Sleep environment
Planned — not currently availableLight, sound, temperature, and bedding. Environment only — nothing here treats a condition.
Books worth the reading energy
Planned — not currently availableReading on energy, work, chronic illness, and lived experience — listed once actually read, not before.
Apps and everyday tools
Planned — not currently availableDigital tools that reduce friction, with their real limitations stated alongside them.
Disclosure
Said plainly, up front
None of the organizations listed above paid for placement, and none of those links are affiliate links. Some future product recommendations may use affiliate links, which means NAP may earn a commission at no additional cost to you. Recommendations should never be purchased placements disguised as personal experience.
Labels
How every recommendation is labeled
The label tells you the basis for the recommendation before you read a word of the description.
- Personally Used
Anne has used this herself, in real conditions, over time.
- Carefully Researched
Not personally used. Selected after research, and labeled as such rather than implied experience.
- Community Favorite
Frequently recommended by people in the community. Their experience, not a NAP endorsement.
- Sponsored
A brand paid for placement. Always labeled, never presented as personal experience.
- Affiliate Link
NAP may earn a commission if you buy through the link, at no additional cost to you.
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